Living with a stoma has been a significant part of my life, and navigating the professional landscape with it has brought its own set of challenges and triumphs. The journey hasn’t been easy, but the support I’ve received from my managers and colleagues over the years has been nothing short of extraordinary. Here’s a glimpse into my experience of having a stoma in the workplace.

The Initial Conversation

One of the most daunting aspects was the initial conversation with my manager and colleagues about my stoma. There were preconceptions to overcome, mainly the fear that people might think I couldn’t do my job as effectively. Despite these concerns, I knew honesty was crucial.

Breaking the news required courage. I chose a quiet moment to talk to my manager, explaining what a stoma is and how it impacts my daily life. To my relief, my manager responded with understanding and support. This set the tone for the rest of the team, who followed suit with empathy and encouragement.

Day-to-Day Management

Managing work activities with a stoma involves careful planning and adaptability. I’ve developed a routine that accommodates my needs, ensuring I have everything I might require during the day. This includes having spare stoma supplies at my desk and knowing the locations of the nearest toilets.

Travelling for work adds another layer of complexity. Before any trip, I meticulously plan to ensure I have more than enough supplies and a small understanding of the healthcare facilities available at my destination. Informing my travel companions about my condition has also been crucial, ensuring they understand my needs and can offer support if necessary for example what to do in an emergency where to find certain items that I may need.

Incredible Support from Managers and Colleagues

I’ve been incredibly fortunate to have had amazing managers over the years. Their support has been instrumental in helping me maintain my professional responsibilities while managing my health. Whether it’s been providing flexibility for medical appointments or understanding when I need to work from home, their accommodation has made a world of difference.

One of the toughest periods was when I had to use feeding tubes while holding a customer-facing role. It was a difficult and vulnerable time. Despite my determination to continue working, my colleagues expressed their concern, suggesting that I should prioritise my health. It wasn’t until my manager and HR stepped in and insisted I go home that I realised the importance of taking a step back. Their intervention was a pivotal moment, reminding me that health is paramount.

Balancing Work and Health

I’ve always prided myself on being a hard worker. Even when I’ve been very ill, I’ve tried my best to stay focused and maintain my work commitments. However, this determination sometimes led me to push myself too hard. Over time, I’ve learned the importance of listening to my body and understanding my limits.

Having a stoma has taught me resilience and the significance of a supportive work environment. My colleagues’ empathy and my managers’ flexibility have allowed me to continue contributing effectively, even during challenging times.

Reflection

Looking back, I realise how lucky I’ve been to have such supportive managers and colleagues. Their understanding and willingness to accommodate my needs have been crucial to my professional success and well-being. It’s a reminder that while our health conditions may present challenges, the right support system can make all the difference.

To anyone navigating a similar path, my advice is to be open about your needs and to seek a supportive work environment. Remember, your health is the most important part of your life, and with the right balance, you can continue to thrive professionally.

Navigating the workplace with a stoma hasn’t always been easy, but with determination, planning, and an incredible support system, it’s certainly possible to maintain both your career and your well-being. 

Kevin